Monthly Archives: July 2011

Loss Talk

Truthfully unraveling this MS journey involves talking about loss, about what can no longer be done.  My pattern these many years has been to ‘focus on the positive’, to ‘just put one foot in front of the other and march … Continue reading

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Remission — A Constant Carrot

I’ve started painting again.  I still have my downstairs studio, but I’ve moved an easel upstairs where the light is more true.  I load my brush with reds and yellows and layer the canvas, creating ridges. There is some blending, … Continue reading

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Is There Ever A Day Without Exhaustion? Ever?

I remember being energetic.  I remember accomplishing many things daily and the subsequent feeling of satisfaction in a day’s work or in a day’s play.  I remember thinking that  ‘being tired’ meant being lazy or uninspired or bored or, worst … Continue reading

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It’s like an unwanted house guest who just will not leave

I have a friend who is a psychologist.  She specializes in issues around loss and acceptance.  As a friend, she has always advised me to make friends with my MS.  She suggests that there will be a constant internal conflict … Continue reading

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I will be so pissed off if this disease shortens my life

I was driving with my niece and my great-niece today  —  the day was warm and full of summer color and I began thinking about the many things to look forward to.  It has been a rough year and I … Continue reading

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